PACE - Palliative Care for Older People in care and nursing homes in Europe Newsletter 3 - June 2017
Dear colleagues Welcome to the third PACE newsletter! PACE is an EU-funded project looking at palliative care for older people in long term care facilities in six European countries. In this newsletter project manager Zeger De Groote gives an update on the PACE study progress. In our news section, we report on a successful European Association for Palliative Care (EAPC) Congress for the PACE consortium who secured several presentations and on the International Society of Nurses in Cancer Care (ISNCC)' document on palliative care models in nursing homes. We were also very proud that PACE partner Jagiellonian University (Poland) conference about improving palliative care in nursing homes in their country was a huge success. You can read more about this and other news, events and issues below.
The last half year has been a very busy, but positive period for the PACE project partners and consortium. We have made huge progress in terms of our studies and our expected impact.
First of all our main studies. For PACE Study 1 (the large-scale cross-sectional study in 6 EU countries examining end-of-life care of deceased residents in care and nursing homes) the main analyses will be published shortly, so keep track of our website and twitter account. Articles on the use of quality-adjusted life year (QALY) in palliative care, on the protocol of study 1, and on palliative care development (application of a typology of implementation) can be found on our website. All research partners are eager to learn and publish on specific topics such as communication, quality of dying, quality of end-of-life care, knowledge, attitudes, cost-effectiveness… in care and nursing homes in Belgium, the Netherlands, Italy, Finland, Poland and the United Kingdom. We’re looking forward to sharing these results with you.
The research partners have been collecting data for Study 2 (a randomized controlled cluster trial in care and nursing homes comparing the health service ‘Pace Steps to Success’ with care as usual) and we hope to start analyzing results by the end of 2017.
We have also been working on reaching out to other researchers, professionals and policy-makers via the submission of abstracts, seminars and presentations at national and international conferences (2017 European Association for Palliative Care Congress, the 2017 Public Health Research Day of the European Commission). We are also proud to have been invited for plenary sessions at the European Union Geriatric Medicine Society congress (Nice, Sept 2017) and the Alzheimer Europe conference (Berlin, Oct 2017). Our Polish partner, the Jagiellonian University Medical College, organized an international conference in Krakow on ‘End-of-life care for older people in long-term care facilities’ at the end of March 2017 and attracted over 200 delegates to talk about improving palliative care in nursing homes in their country.
Last but not least, we have had multiple research and management meetings in order to keep track of our progress and to work towards our commons goals. In May 2017 we organized a consortium meeting in Treviso (Italy) including a General Assembly and two Impact and Dissemination meetings. We invite you to find out more on this newsletter.
Zeger De Groote Project manager
Report on International Conference "End-of-life care for older people in long-term care facilities" 31.03/01.04.2017, Krakow, Poland Read more
On 08-09 May in Treviso, Italy, the EU-funded project PACE held a General Assembly and a Consortium Meeting, including 2 Impact and Dissemination meetings. Read more
AGE Platform Europe launches the new version of their toolkit on the dignity and wellbeing of older persons in need of care. Read more
International Society of Nurses in Cancer Care (ISNCC) publishes document on palliative care models in nursing homes. Read more
PACE at European Association of Palliative Care congress in Madrid, 18-20 May 2017.
Awards: Sheila Payne (EAPC Award for outstanding contribution to palliative care) and Lara Pivodic (EAPC Early Researcher Award)
Parallel session: 'Palliative Care in LTCFs in Europe: State of the Art'
Poster presentations: Tinne Smets, Anne Wichmann, Marc Tanghe and more.
More information on the PACE website and our twitter account
PACE featured in in Impact Magazine
In May 2017, an article about the (targeted) impact of the PACE project appeared in the international magazine of Science Impact Ltd, an edition titled ‘multidisciplinary health research’. The magazine contains articles on changing the attitudes to palliative care for older people, patient-centred cancer care, but also on biases in clinical trials, rare diseases and wellbeing. Read more
Mapping palliative care systems in long-term care facilities in Europe: Update on the EAPC taskforce.
We are pleased to report that the second EAPC Taskforce looking at palliative care in long-term care has been completed. Within the work of this most recent taskforce, we have engaged with 29 European countries, building upon the work of the previous taskforce that considered palliative care provision in 13 European countries. Read more
Bassal, C., & Silva, M. (2017). Research Project PACE II: Implementation of a Pedagogical Program of Palliative Care in Nursing Homes in the French Part of Switzerland. Oral presentation at the Scientific Day of the Palliative Care Research Switzerland, University of Applied Sciences and Arts Western Switzerland (HES-SO), Délémont, Switzerland (9 March 2017).