PACE - Palliative Care for Older People in care and nursing homes in Europe Newsletter 2 - October 2016
Welcome to PACE
Welcome to the autumn PACE project newsletter. As the project progresses we aim to keep you up-to-date with all of the latest news about PACE.
In this edition we have a report on the PACE general assembly which took place in beautiful Helsinki, Finland in May. We have feedback on the important policy conference that took place in Brussels in June which showcased palliative care for older people and was attended by key stakeholders.
One of our PACE researchers, Nanja van Dop shares her experience of working as part of the PACE consortium and conducting PhD research with residents of nursing homes with a focus on dementia. Also featured is the development by the European Forum for Primary Care, of a position paper on palliative care in primary care. As always we also have a round up of other PACE news including new publications and future events.
Each edition of the PACE newsletter features updates from the project, latest news on presentations, news, events and publications and an 'in the spotlight' section where those involved in PACE describe their involvement in the project.
On 23-24 May in Helsinki, Finland, the EU-funded project PACE - Comparing Palliative Care in Care Homes Across Europe held a General Assembly and a Consortium Meeting, including an Impact and Dissemination meeting.
During the two-day Consortium Meeting, speakers from different Work Packages (WP1, WP2, WP4, WP6 and WP8) presented their progress so far, including some preliminary results. Read more (on the Alzheimer Europe website)
Last 15 June 2016 AGE Platform Europe organised the intermediate PACE Policy Conference at the Brussels Office of the Council of Europe. The session was well-attended, with about 40 participants from civil society, policymaking and academia, among others.
The session aimed to show how amodern vision on palliative care means challenging traditional assumptions such as limiting it to the very late stages of life. Participants could learn and discuss about the benefits of accessing palliative care along the management of a life-threatening health condition, in combination, as much as possible, with cure. Read more
Nanja van Dop, PhD-researcher End-of-Life Care Research Group, VUB, Belgium
My PhD research is about palliative care in nursing homes in different European countries with a focus on dementia. For example, I am currently writing an article about demographic and clinical challenges of dying in nursing and care homes in Europe. Until recently, I have been responsible for the complete data collection of study 1 in Belgium. Read more
Danni Collingridge Moore, Research Associate International Observatory on End of Life Care at Lancaster University, United Kingdom
I started work as a researcher for the UK arm of the PACE study in January 2015, and became the senior research coordinator for Study 1 and Study 2 in January 2016. My current duties include coordinating any ethical approvals required for the study, monitoring recruitment and managing the project team. Read more
EFPC Position Paper on Palliative care in Primary Care
The European Forum for Primary Care (EFPC) will develop a Position Paper on Palliative care in Primary Care in the framework of its’ series of Position Papers on relevant topics in relation to Primary Care. A draft of this position paper was distributed electronically with additional questions through the European Forum for Primary Care network in 2015 and 2016.
The 9th EAPC World Research Congress took place in Dublin, Ireland 8-10th June 2016. The congress was very well attended by healthcare professionals representing a range of disciplines and academics from throughout Europe and beyond.
Over one thousand two hundred delegates from forty countries globally attended the congress. A broad range of palliative care topics were presented by researchers ranging from novice to expert. Palliative care research was presented on topics ranging from clinical trials to carers, spirituality to outcome measures, and integrated care to the topic of PACE – palliative care of older people in long term care facilities in Europe. Read more
29 August: PACE scientist awarded International Psychogeriatric Association award Members of the PACE - Palliative Care for Older People in care and nursing homes in Europe project were delighted to receive news on 29 August that one of the project’s Partner Leads, Professor Myrra Vernooij-Dassen has been awarded the International Psychogeriatric Association (link is external)(IPA) Service to the field of Psychochogeriatrics award for demonstrating “inspiration, leadership, vision, ethics, innovation, organizational development and motivation in areas of psychogeriatrics”.
International Conference "End-of-life care for older people in long-term care facilities" International Conference (Poland)
The conference is targeted at healthcare and social workers, nursing staff as well as managers of LTCFs. Through presentations and workshops the conference participants will be familiar with the latest guidelines of care principles and tools for implementation and execution of a high-quality end-of-life care. The conference will be held March 31st-Aprli 01st2017 in Kraków, Poland. Read more
The research leading to these results has received funding from the European Union’s Seventh Framework Programme (FP7/ 2007-2013) under grant agreement no 60311 (PACE project Palliative Care for Older People).